Friday, August 30, 2013

Cardiology Check Up!

Mylah had her Cardiologist check up today. She hasn't been back since February, so it was time. 


We made the two and a half hour trek to the city as a family. It's always a long drive, but today the kids were ansty and a little crazy! We survived somehow.

Upon arrival Mylah played and smiled and said Hi to everyone. I couldn't help but watch her and feel so tremendously grateful for her and her continued health. She is one amazing girl!

They took her back to weigh her and get her length. She started to get nervous but did pretty well. Then it was EKG time and I had to sit and hold her. She's at the age where she won't lay down for just any reason. She managed the "sticker" test with flying colors! 

We waited a few more minutes for Dr. Thomas and then took her back for her ECHO. She again became really nervous, but eventually laid down and let him scan her heart. It looked beautiful and is functioning well.

Dr. Thomas says that the gradient level in her pulmonary valve is about a 25% and that us a little higher than last time, but in the range he'd like. It's leaking more than before but that's to be expected, given the way it was patched in surgery. Other than that, her heart is functioning as it should and her O2 Saturations are at 98%. He doesn't want to see her for six more months.

We are grateful, blessed and I overwhelmed with love for our CHD Warrior. Her little heart continues to function and keep her alive and well. For that we are thankful!

We did a little shopping after the appointment, stopped by our old house to check it out, and then made the drive back home! The day was long, but a major success! 

Monday, August 19, 2013

It's been a while...

Our computer decided to go on the fritz again! That's kind of my excuse for not blogging, but another one is I've been dedicated to our family blog and keeping up on it. And truthfully Mylah is doing so well these days that I don't have much to write! She's growing into the cutest little toddler and I'm so thankful.

Mylah is 22 months old now, 16 months post op and doing wonderfully! She has such a happiness for life and is an example and reminder to me of the miracles that I've seen since her birth.

Mylah is going to be a big sister to a healthy heart baby brother in November. She will tell me where "baby bluh-low" is in my tummy and loves babies, so I know she will love him!

Mylah has started potty training. Today was rough, long and tiring (at 27 weeks pregnant) but I refuse to give up! She is so smart and ready for this, it will just take a few more days!

Mylah talks and sings, dances and twirls, runs and falls. She's active and super busy. She's curious and silly. I can't get enough of our sweet girl.

She has a check up with her Cardiologist this Friday. It's been six months since her last ECHO and EKG, and somehow every time these appointments come up, I dread them. I just wait for some bad news, but I am sure things will be ok, I just err on the side of caution I guess. I will be sure to post an update on the doctor visit.

Mylah is such an amazing little girl. I cherish every moment with her. I am thankful for the hard times that have brought us to this wonderful time in her life - watching her grow and thrive.

Here's a recent picture of our sweetheart, we just love our precious Heart Girl! I will be sure to post after Friday's appointment!


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MRI

Today Mylah had an MRI to map out what we will do in the near future for her heart health. Currently her left ventricle is slightly ...