Monday Nov. 28th - Today was Mylah's second Post-Op check up with Dr. Ciccolo. She is looking really good to him and he says her scar is right on track to heal just fine, until her full repair. I asked all the questions I could think of. When we would do her full repair, if she would have any spells between now and then, and if she will out grow her shunt? He expects her full repair after 6 months old. Anytime between then and one year of life. No she shouldn't have any cyanotic spells, but she could, we just have to watch for it. And yes she will out grow her shunt. When this happens will determine her full repair date. For now, he is happy with her post-op progress.
Wednesday Nov. 30th - Today Mylah met with Dr. Thomas her Cardiologist. He walked in the room and we exchanged some chit chat and then he proceeded to tell me what to look for if she has a cyanotic spell. We have seen her in the most extreme cyanotic condition (when she had her first Tet spell at the hospital) and so we know what to watch for - blue extremities, blue mouth, trouble breathing etc. He also explained to me what to do (besides call 9-1-1). He said to take her knees and push them to her chest, this will bring the blood from her extremities to her lungs and heart.
Why was he explaining all this to me you ask? He doesn't want to see her back for 2 months!! Happy Day! She is saturating in the 80 to 84's, eating and growing well (11lbs. 8 oz. - 23 inches) so he doesn't want to see her until February. We feel so blessed and are grateful for her progress.
Friday Dec. 2nd - Today Mylah had her third round of Synagis - the RVS antibody shot. She hates shots and was sound asleep when the lab tech gave it to her, but she took it like a champ and cried a little, but then fell back asleep! I am grateful that she was approved for these shots to give her extra protection this winter season!
5 hours ago