Saturday, October 8, 2011

Post Surgery - Day 2

10-07-2011

We arrived at the PICU Friday morning to our baby girl that was wide awake! So we immediately started taking pictures. We were pleased to see that her breathing tube had been removed (extubated), and that she was taking in air on her own. She was on a Nasal Cannula to supplement her oxygen levels. We both immediately remarked how much better she was looking from the previous night. Swelling had gone way down. Doesn't she look beautiful?!




Mommy wanted to give her some identification, and was tired of people calling her a boy, so we glued a little bow in her hair.


Mommy and Daddy have no doubt that she knows who we are, she knows our voices and is comforted when she hears us talking to her. She responds to us like she has known us forever!
She probably has!


She looks us right in the eyes as if to ask us, "Mommy, Daddy, am I going to be okay?"



Grandma Cox, and Brother and Sister came to visit. Rylee was so curious and wanted to touch her soft head of hair.


Brother is proud of his little Sis. He knows, and remembers what it was like to have everything hooked up to him (kidney surgery's). He sympathizes with her, and knows the pain she feels. He is happy to see her doing better each day.




Mommy got to hold her for the first time after surgery!



She was "going to town" on her binkie, and loved it even more when we dipped it in some "sweet juice" that made it so yummy for her.

Mommy has her red and blue (Congenital Heart Defect awareness colors) watch band on.



Daddy got to hold her next.



She fell asleep in his arms. Her binkie, and Daddys arms make her feel so safe and warm.




Our favorite Nurse Laura took this picture for us. She reminds us of Neil's sister Meredith. Looks just like her. We both comment on how it feels like we have just spent the day with Meredith when she is there giving care to Mylah. Another tender mercy.




Neil's family came to visit in the afternoon. His oldest brother Kyle, sister-in-law Gerilyn, and their youngest daughter Bella. His brother Wade, sister-in-law Jessica, and their youngest daughter Hannah. Bella and Hannah were the first cousins to see her. We enjoyed their visit.

This is Hannah, Wade and Jessica's youngest daughter. Mylah's cousin.



Mylah eating from a bottle for the first time Friday night at about 9:30. She drank 10 ml. of Pedialite. She tolerated this first bottle, so if the next two went well, the nurses were going to graduate her to Lara's breast milk from a bottle. Yay!


She actually ate better for Daddy. We have another "Daddy's Girl" on our hands.



After 2 days of no food, nothing tasted so good. A look of satisfaction, and it's only pedialite.



After we took this picture, we tucked her in, and kissed her goodnight as she fell asleep. Mommy and Daddy went home to rejuvenate and rest too. There is nothing more important than being there at the hospital to support her. We know Dallin and Rylee are aware of what is going on, and we are trying our best to give equal attention to them and their needs as well. We thank all of you from the bottom of our hearts for being willing, and rendering services here and there, and for kind words, and prayers for our family. It is hard to be in all of the places we feel like we should be right now, but family and friends have surely made it a tolerable task. We love you, and can't thank you enough. We could not bear this on our own. We acknowledge divine help as well. The Lord has "been on [our] right hand and on [our] left, and [His] Spirit has been in our hearts, and [His] angels round about [us], to bear [us] up" (D&C 84:88).
We have not been alone!

4 comments:

  1. She looks great!! What a beautiful little girl!! So happy to hear she is doing so well!!! Thanks for the updates

    ReplyDelete
  2. She looks so beautiful Lara! She is lucky to have a family as strong and supportive as yours. We'll keep you guys in our thoughts and prayers.

    ReplyDelete
  3. Lara I love this blog. One day when Mylah is old enough to read it and understand the photos she will be so thankful that you kept this beautiful journal of her life.
    She looks amazing, strong and healthy pink. She is so very blessed to have you as parents. If you look around you there at the PICU you will sadly notice that all the babies there don't have this same beautiful blessing. It is also amazing how much you can feel the Spirit there as you are in a place where many have just left Heavenly Fathers presence to start their earthly journey. A wonderful feeling. You are doing the right thing. Keep it up.
    Natalie

    ReplyDelete
  4. She's looking so much better, I'm happy to hear that she's doing better too. I put her name along with yours and Neil's on the prayer list at the temple last night...I hope it helps.

    ReplyDelete

MRI

Today Mylah had an MRI to map out what we will do in the near future for her heart health. Currently her left ventricle is slightly ...